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| First cover - my drawing & pic of Soren |
Is he cured? No.
But there is hope on the horizon with amazing treatments like CRISPR (genetic editing). So what about those that aren't diagnosed? Great question. There are so many patients with the same condition as my son that have not been properly diagnosed. So even if a cure exists, if they aren't diagnosed...it does them no good.
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| 2nd Cover |
So my goal was to use my talents (writing) to educate others about Vascular Ehlers Danlos Syndrome. Rarity is a book about a teen diagnosed with this disorder and the emotional rollercoaster that all involved endure. I wrote it based on my own emotions from my son being diagnosed. It's a young adult book, the characters in it are in High School, a time when kids are very much thinking about themselves and how things will impact them. At the back of the book, there is information about the disorder and signs and symptoms to consider. My hope is that someone reading it may have a lightbulb go off and a proper diagnosis can be made on someone not previously diagnosed.
I thought I'd show some of the covers for it as it evolved for your viewing pleasure.
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| Final cover - published with Limitless Publishing |
★•✩•★ SYNOPSIS ★•✩•★
Brogen Mathers can’t deal with teen drama…
As an empath, she is constantly bombarded with other people’s energies. Despite coping techniques taught by her psychologist mother, it’s often too much to bear, forcing her to avoid most activities a typical high school junior would enjoy.
Jay Wilken won’t let his past define him…
A dead mother and an alcoholic father brought Jay to Stanton, but he doesn’t want pity. His good looks, charisma, and friendly nature quickly win over the whole student body, but he has his eye on one girl…Brogen.
Brogen can’t believe anyone could be so genuinely nice. It has to be an act, right? But when Jay literally saves her from deadly jaws, she has to admit he’s exactly what he appears, and he’s worth risking the potential emotional upheaval.
“Drama” might as well be Becca Grant’s middle name…
Another newcomer to Stanton, Becca’s blonde beauty and abundant attitude shoots her straight to the top of the popularity charts—and she believes Jay belongs right there beside her. Accustomed to getting exactly what she wants, she launches a relentless mean-girl campaign to shake up Brogen and claim Jay for her own.
Everything changes with a devastating diagnosis…
When Jay learns he has a rare and potentially fatal disorder, he keeps it secret and begins to push Brogen away to spare her future pain—which is exactly the sort of opening Becca is waiting for.
As Jay’s well-meaning deception unravels,
Brogen realizes there is much more than her heart at stake…
But how far is she willing to go to fight for someone she loves?
★•✩•★ Grab your copy! ★•✩•★
AMAZON US: http://amzn.to/1Gk4nHz
AMAZON UK: http://amzn.to/1CCdVTL
PAPERBACK: http://amzn.to/1M49djo
1 comment:
I love the final cover best, especially as it's written for young adults. The first cover would've been great for oder adults because it gives the impression that something happens to the child / grandchild.
It's a good thing to make people think about rare Illnesses. It's important to know that rare illnesses like the the Vascular Ehlers Danlos Syndrome exist and can happen to everyone and to write a book for young adults is a great way to do so because they will remember this second-hand-experience of reading.
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